Welcome to our site! My daughter Kylie had Alpers Disease, a rare genetic disorder that is characterized by unstopable seizures, progressive weakness, and eventually death.  She appeared to be a perfectly healthy child, except for gross motor delay until September 13, 2005 when she had a massive seizure that lasted at least 12 hours, and was stopped by putting her in a drug-induced coma.  It took over 3 months to get her devastating diagnosis.  We fought hard against the disease that kept weakening our little girl, took her sight, and eventually her life. She passed away on July 5, 2006 - she was 3 years, 3 months and 3 days old. We miss her more than any words can describe.